Fixing Boo Boo - edition by Pat Stanford. Professional & Technical eBooks @ .
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Do you know a person with a brain injury? Pat did. Her sister, Barb, needed help and Pat wanted to help.
All Barb really wanted was to be treated like everyone else, but it was difficult since she was born with cerebral palsy. All the family wanted was for her to be safe and well cared for, especially after a life-changing accident that left her brain-injured. Stubborn and determined, Barb carved out a life for herself, overcoming many obstacles. After her husband died, she needed assistance to cope with daily meals and chores.
Her sister and brother-in-law encouraged her to sell her house and come live with them. The family thought they were providing a home for a family member, but they had no idea what dealing with brain injury meant. They found out! A story of one family and the struggles they faced to live with the diagnosis of Brain Injury.
"Fixing Boo Boo is heartwarming, informative, and funny from a sister who chose to be a caregiver not knowing what she didn't know about brain injury. It's the story of 9,000 families every year in Florida who give up their lives to care for their loved one.
Valerie Breen CEO, Brain Injury Association of Florida.
Fixing Boo Boo provides a great perspective! Many caregivers will relate to it, and just as importantly, it will invoke thought about disability sensitivity from others that have not been touched by disability… yet. It’s a great read!
David C. Jones, President Florida Disabled Outdoors Association
Fixing Boo Boo - edition by Pat Stanford. Professional & Technical eBooks @ .
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Fixing Boo Boo - edition by Pat Stanford. Professional & Technical eBooks @ . Reviews
I have been friends with Pat for nearly 15 years. I knew BooBoo and visited her in two of the nursing homes but was unaware what all they went through. This book written with wit, humor, and yes, some sarcasm, will enlighten what one could expect living with one with brain injuries. She includes in her story where to find help and ways to get through red tape to aid in dealing with these special people. BooBoo's story is well written, one I didn't want to put down.
I had been aware of traumatic brain injury but until reading this book, I truly didn’t understand the impact that it can and does have. Not just on the individual with the injury but on their families and caregivers. Fixing Boo Boo is a true story about two sisters, one who has a traumatic brain injury and the other who becomes her caregiver. They have never been close which adds to the difficulty of their journey. It is raw, honest, heartfelt and wonderfully written.
A very well written memoir of the writer caring for her brain damaged older sister. The writer presents her real life story with such a detailed and engrossing manner that you feel you are right there living with the family and sharing their feelings.
An intense book that hooked me from page one until the end. I highly recommend it.
I chose this rating because there were aspects of the book I liked as well as those that I did not. The author writes of Barb’s injury, yet does not concisely describe its impact on her brain. It seemed like though the author took care of. Her, she felt that Barb was a burden to her and her family.
The best parts of the book were the descriptions of what Barb did and how she lived. Those snippets gave a window into her life and her mind.
I would recommend this book to anyone who is estranged from loved ones. This book exemplifies how little time we have with the people that we a surrounded by.
Although this book is labeled as fiction, it reads like a real account of what happens when one relative takes in another relative for whatever reason. Either way, I appreciated this account of one sister truly reaching out to help another. It showed me that regardless of how much we might love a sibling, we might never truly understand them but loving them is all that matters. Bravo to Pat on completing such an emotional first novel.
I found this book at times hard to read, not because it wasn’t well written, it stuck a never with aging family members all around me. It made me look into my and my families own mortality. A great read, highly recommended.
This was not an easy book to read. As a survivor of a brain injury and a brain injury support group leader, I had the privilege of meeting many individuals whose lives were turned upside down by it. No matter if that individual was the injured one, family, friend, or health professional. If a life was not altered physically there were emotional, mental, and societal changes to cope. Barbara was a friend, separated from me by a three hour drive, so we spoke on the phone often. By hearing about all that she was going through, I knew things were bad. Pat’s personal account only magnifies the statement “You never really know ‘til you go through it.†Excellent and moving life story.
Pat Stanford’s Fixing Boo Boo (Southern Yellow Pine Publishing 2017) well deserved its prestigious Gold Medalist award from Florida Authors and Publishers’ annual President’s Book Awards. It is, simply stated, a stunning book.
At once painful and sad, yet ultimately a story of grace and transcendence, Fixing Boo Boo details a reluctant caregiver’s journey with her brain-damaged older sister, Barb.
As children, the two sisters were never close, a point which figures strongly during the course of the book. Age differences, personality differences, and a marked difference in their housekeeping attitudes created tensions between the two when they were young and shared a bedroom in their parents’ house. The same tensions, exacerbated by Barb’s mental and physical decline and further complicated by the well-known horrors of the American health care system, return to haunt them as adults trying to share a house.
Barb, also known as Boo Boo, was born with cerebral palsy, but her condition worsened after an automobile accident caused a brain injury. Other injuries followed, and Barb also suffered from glaucoma, COPD, and hearing loss. Though Barb was able to get through college and earned a degree, and lived independently for a while, her cumulative injuries and conditions made it difficult for her to cope with modern life. Barb's husband, Bill, took care of her after a fashion. Pat Stanford’s detailed description of the house the two lived in leaves little doubt that Bill too suffered from some form of mental illness. He was a hoarder and a substance abuser, yet also a highly intelligent and educated man. Yet, despite the mess, the junk, and dirt of their humble house, the two managed to more or less get alone—until Bill died.
Faced with myriad problems regarding her sister Barb after Bill’s death, Stanford finally decided the only thing to do was to have her sister come live with her and her husband. Like most caregivers, the author has moments of regret for this, yet she soldiers on, and forms a bond—however slowly and difficult—with her brain-injured sister.
The story is as much about the damage and toll caring for Boo Boo caused to Pat Stanford and her husband as it is about Boo Boo. Because there was no “fixing†Boo Boo, the care-giving years involve hospitals, doctors, assisted living, ineffective (or worse) medical and psychological so-called help, and the wear and tear on Stanford and her husband. The strain naturally impacted their careers and their marriage.
Anyone who has been a caregiver for a person with mental disorders, as I confess I have been twice, will relate at once with the high emotional and physical demands such care places on the caregiver. I read Fixing Boo Boo with empathy—and a great deal of admiration for Pat Stanford as a person.
Aside from Pat Stanford as a compassionate person, I have admiration for her as a writer. She gives poignant details and describes things with such precision that I can see, feel, smell, and hear the story develop. This is a very honest book, and the writing is as crisp and honest as the story told. Make no mistake, Pat Stanford is a very fine and talented writer. This is a book that deserves to be widely read.
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